Hi, I’m Tyler, the admin of the MG Hope blog. I have MG among many other chronic illnesses and I use a mobility scooter to get around on my college campus.
I’m a part time college student studying for a B.S. in Computer Information Systems & Technology. I started college in 2011 as a full time student before my diagnosis and kept going while trying to get a diagnosis. I am determined to finish and my mobility scooter is my lifeline to get to and from classes and meetings as a student leader. Without a new scooter, I will likely be unable to finish school.
My current scooter needs about $500 – $600 worth of parts and it is 15 years old, bought used. I need a new one as I can’t see putting money into something that may or may not last, but I lack the funds to buy it. My insurance won’t pay for it as I don’t need or use it within my home to complete my “daily living activities.”
I greatly appreciate any help you can provide and I hope you’ll consider sharing this link.
Grieving the person you were before your chronic illness is a normal process.
A great article about one person’s grief over the person she was before rheumatoid arthritis. I believe the article applies to most if not all chronic illnesses. I can definitely relate to it.
Hello everyone, I just wanted to let everyone know that we’ve updated the website URL/Address to be http://www.mghope.com/
Thank you and have a great day!
I feel this is a very important piece of legislation that could benefit many people living with rare diseases. Click the link and then click the “Take Action” button. Follow the steps and instructions to send messages of support to your legislators.
H.R. 971 / S. 1421: The OPEN ACT
Check out Jessica Gimeno’s (Fashionably Ill) short graduation speech at the link below.
Source: My Commencement Address for Int’nl Fibromyalgia Institute Graduation
Safa’s family honors her by wearing teal in their family photos. A young MG warrior taken far too soon; may she rest in peace.
My love goes out to The Alis as they are a remarkable family who fight for MG awareness as much as possible!
Check out the photos here and read the short story attached.
“When I fight for disability rights, it’s not just my rights I’m fighting for — I’m fighting for yours.”