Hi, I’m Tyler, the admin of the MG Hope blog. I have MG among many other chronic illnesses and I use a mobility scooter to get around on my college campus.
I’m a part time college student studying for a B.S. in Computer Information Systems & Technology. I started college in 2011 as a full time student before my diagnosis and kept going while trying to get a diagnosis. I am determined to finish and my mobility scooter is my lifeline to get to and from classes and meetings as a student leader. Without a new scooter, I will likely be unable to finish school.
My current scooter needs about $500 – $600 worth of parts and it is 15 years old, bought used. I need a new one as I can’t see putting money into something that may or may not last, but I lack the funds to buy it. My insurance won’t pay for it as I don’t need or use it within my home to complete my “daily living activities.”
I greatly appreciate any help you can provide and I hope you’ll consider sharing this link.
I feel this is a very important piece of legislation that could benefit many people living with rare diseases. Click the link and then click the “Take Action” button. Follow the steps and instructions to send messages of support to your legislators.
In honor of Andrew Abdayem, who passed in March due to respiratory crisis at age 23, please light a sparkler or “something spectacular” this 4th of July and share a picture or video of it. His mother, Tracie, told me the 4th of July was his favorite holiday.
If you share a video or picture of your sparkler or fireworks in his honor, please tag us on Twitter or post a link to your video or picture in the form below. Make sure your photo or video are set to public so I can see it. Within a few days I’ll put together a slideshow.