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Myasthenia Gravis

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Month: August 2016

Update – New Website Address

Hello everyone, I just wanted to let everyone know that we’ve updated the website URL/Address to be http://www.mghope.com/

Thank you and have a great day!

Format LinkPosted on August 26, 2016Author Tyler MorrisCategories UncategorizedLeave a comment on Update – New Website Address

The OPEN ACT

I feel this is a very important piece of legislation that could benefit many people living with rare diseases. Click the link and then click the “Take Action” button. Follow the steps and instructions to send messages of support to your legislators.

H.R. 971 / S. 1421: The OPEN ACT

Format LinkPosted on August 23, 2016Author Tyler MorrisCategories Awareness, LegislationLeave a comment on The OPEN ACT

Commencement Address for Int’nl Fibromyalgia Institute Graduation

Check out Jessica Gimeno’s (Fashionably Ill) short graduation speech at the link below.

Source: My Commencement Address for Int’nl Fibromyalgia Institute Graduation

Format LinkPosted on August 14, 2016Author Tyler MorrisCategories Uncategorized

Family Honors Safa

Safa’s family honors her by wearing teal in their family photos. A young MG warrior taken far too soon; may she rest in peace.

My love goes out to The Alis as they are a remarkable family who fight for MG awareness as much as possible!

Check out the photos here and read the short story attached.

Format LinkPosted on August 11, 2016Author Tyler MorrisCategories UncategorizedLeave a comment on Family Honors Safa
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